(IN BRIEF) The Luxembourg Institute of Health has launched ICP4Rare Diseases, a new research project focused on improving the diagnostic pathway for children with rare diseases in Luxembourg. Led by the Clinical and Epidemiological Investigation Center, the study will explore … Read the full press release →
Posted in Education, European Union, Healthcare, Industrial, Luxembourg, Non Profit, Portugal, Science
Tagged ALAN Maladies Rares Luxembourg, Centre Hospitalier de Luxembourg, children with rare diseases, chronic conditions, CIEC, Clinical and Epidemiological Investigation Center, coordinated care, Department of Precision Health, diagnostic pathway, Dr Manon Gantenbein, early diagnosis, family experience, focus groups, healthcare access, healthcare professionals, healthcare system, ICP4Rare Diseases, ICP4Rare Diseases Study Aims to Identify Barriers and Improve Access to Rare Disease Diagnosis in Luxembourg, interviews, Laboratoire National de Santé, LIH, LIH-Led Project Brings Families and Healthcare Professionals Together to Improve Rare Disease Care Pathways, Luxembourg, Luxembourg Institute of Health, Luxembourg Rare Disease Study Focuses on Earlier Diagnosis and Better Support for Children and Families, New Research Initiative in Luxembourg Targets Unmet Needs in Paediatric Rare Disease Diagnosis, paediatric rare diseases, patient care, patient experience, rare disease diagnosis, rare diseases, Rita Da Rocha Oliveira, University of Luxembourg, University of Porto, unmet medical needs
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