Marketing Authorization will enable patient access to ADYNOVI throughout Europe ZUG, 16-Jan-2018 — /EuropaWire/ — Shire plc (LSE: SHP, NASDAQ: SHPG), the global biotechnology leader in rare diseases, announced today that the European Commission (EC) has granted Marketing Authorization for ADYNOVI … Read the full press release
Posted in Healthcare, Pharma & Biotech, Switzerland
Tagged ADYNOVI, bleeding, Dr. Peter Foertig MD, hemophilia A, rare diseases, Shire, treatment options
LONDON, 01-Dec-2017 — /EuropaWire/ — On December 5-6, 2017, 200 high-level experts from government, academia, biopharmaceutical developers and patient organisations convene in London (UK) to address the mounting challenge of accessibility and patient access to high-value, high-cost medical therapies. The … Read the full press release
Posted in Government, Healthcare, News, Non Profit, Pharma & Biotech, Science, Society, United Kingdom
Tagged academia, Aetna, analytica|LASER, auto-immune diseases, biopharmaceutical, biopharmaceutical developers, Cancer, deadly HIV epidemic, Dr. Harold Paz, Dr. Olivier Brandicourt, Dr. Sarah Garner, drug developers, drug policy, EURORDIS-Rare Diseases Europe, French HAS, global health systems sustainability, government, health ministries, health systems, Healthcare, high-cost medical therapies, high-value medicines, Julia Corner, life-saving drugs, London School of Hygiene and Tropical Medicine, medicine access, medicine accessibility, National Institute for Health and Care Excellence, not-for-profit event, patient access, patient organisations, Pharmaceutical, Prof Peter Piot, Prof. Dominique Le Guludec, Prof. Lucien Abenhaim, rare disease, rare diseases, Renaissance St Pancras Hotel, Sanofi, Sir Andrew Dillon, Ulrich Neumann, World Health Organization, Yann Le Cam
BRUSSELS, 18-3-2015 — /EuropaWire/ — The 22nd meeting of the EURORDIS Round Table of Companies recently took place in Brussels on the occasion of Rare Disease Day 2015 and focused on the theme ‘Rare Diseases: Going Global’. This EURORDIS corporate-membership group … Read the full press release
Paris, France, 28-2-2014 — /EuropaWire/ — Today is our day. 28 February 2014. Rare Disease Day 2014. Let the world know! There are many ways you can share the news that Rare Disease Day is TODAY! A multitude of activities and events are already … Read the full press release
Posted in France, Healthcare, Society
Tagged auction in Canada, better care, EURORDIS, Fun Play Day in Lebanon, informational awareness-raising campaign in Paraguay, Louise Taylor, march in Austria, photo exhibit in China, Rare Disease Day 2014, rare diseases, seminar in India, television interview in Kenya
Company is pleased to host second international conference dedicated to the research of rare and orphan diseases Novartis is engaging in public dialogue to help raise greater awareness of rare diseases and support for patients Company celebrates more than 50 … Read the full press release
Posted in Healthcare, Pharma & Biotech, Science, Society, Switzerland
Tagged 2nd international conference of research of rare and orphan diseases, 6000 rare diseases, Ciba, Desferal®, Dr. Mark Fishman, EURORDIS, National Organization for Rare Disorders, Novartis, orphan diseases, Rare Disease Day, rare diseases, rare diseases area, rare hemopathies, RE(ACT) Congress 2014
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