EURORDIS

EURORDIS NEWSROOM (4 press releases)

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EURORDIS to represent people living with a rare disease across Europe in new EU-funded INNOVCare project

PRESS RELEASE -- 24, November 2015

BRUSSELS, 24-11-2015 — /EuropaWire/ — EURORDIS will be the voice of people living with a rare disease across Europe in the new INNOVCare project. INNOVCare (Innovative Patient-Centred Approach for Social Care Provision to Complex Conditions) addresses the social challenges faced … Read the full press release →

EURORDIS partners in ADAPT SMART project that enables coordination of Medicines Adaptive Pathways to Patients (MAPPs) activities

PRESS RELEASE -- 30, September 2015

ADAPT SMART PARIS, 30-9-2015 — /EuropaWire/ — EURORDIS is partnering in the recently launchedADAPT SMART* project, which will establish a platform that enables the coordination of Medicines Adaptive Pathways to Patients (MAPPs) activities. MAPPs can help to ensure access to … Read the full press release →

EURORDIS: Rare diseases are not yet recognised as an international public health priority

PRESS RELEASE -- 18, March 2015

BRUSSELS, 18-3-2015 — /EuropaWire/ — The 22nd meeting of the EURORDIS Round Table of Companies recently took place in Brussels on the occasion of Rare Disease Day 2015 and focused on the theme ‘Rare Diseases: Going Global’. This EURORDIS corporate-membership group … Read the full press release →

EURORDIS marks Rare Disease Day 2015 with ‘Rare but Real: Talking Rare Diseases’ discussion event on 24 February at the Residence Palace, Brussels

PRESS RELEASE -- 12, February 2015

PARIS, 12-2-2015 — /EuropaWire/ — To mark Rare Disease Day 2015, EURORDIS is holding a ‘Rare but Real: Talking Rare Diseases’discussion event, which will include contributions from patient representatives who have had a game-changing influence on policy and relevant decision … Read the full press release →