Die Internetplattform www.krankheitserfahrungen.de bietet Informationen für Patienten und Angehörige
Freiburg, 15-9-2015 — /EuropaWire/ — Die Internetplattform www.krankheitserfahrungen.de hat ein neues Modul: Es widmet sich dem Thema „Darmkrebs“, der zweithäufigsten Krebserkrankung in Deutschland. Eine Arbeitsgruppe am Institut für Psychologie der Universität Freiburg und an der Berlin School of Public Health der Charité-Universitätsmedizin Berlin hat die Inhalte erarbeitet. Das Bundesministerium für Gesundheit hat das Projekt innerhalb des Nationalen Krebsplans gefördert. Das Modul ergänzt die auf der Plattform vorhandenen Erfahrungssammlungen zu Diabetes, chronischem Schmerz, chronisch-entzündlichen Darmerkrankungen, Epilepsie, Brust- sowie Prostatakrebs.
Das kostenfreie Angebot präsentiert nach einem wissenschaftlichen Konzept erhobene Krankheitserfahrungen von Betroffenen. Forscherinnen und Forscher erfragen die Inhalte bundesweit in Interviewstudien und präsentieren sie mittels ausgewählter Texte, Audiodateien und Videos. Die Betroffenen erzählen von ihrem Leben mit einer Erkrankung sowie den Folgen und Veränderungen im Alltag. Im Vordergrund stehen persönliche Erlebnisse mit der Diagnose, Therapiemöglichkeiten, Behandlungen und Nebenwirkungen, medizinischer Versorgung und Bewältigung der Krankheit. Die Inhalte dienen der Information und Unterstützung von Patientinnen und Patienten sowie Angehörigen, bieten Anschauungsmaterial für die Ausbildung von Ärztinnen, Ärzten und medizinischem Personal. Das Team wertet das Material zudem in wissenschaftlichen Studien zur Perspektive von Betroffenen auf das Leben mit einer Erkrankung weiter aus.
Die Internetplattform ist werbefrei, kommerziell unabhängig und wird von der Arbeitsgruppe DIPEx (Database of Individual Patients’ Experiences) Germany an der Abteilung für Rehabilitationspsychologie und Psychotherapie der Universität Freiburg sowie am Institut für Allgemeinmedizin der Universität Göttingen betreut. DIPEx International ist der Dachverband, in dem sich Arbeitsgruppen, die Online-Portale zum Thema Krankheitserfahrungen betreiben, aus derzeit 13 Ländern zusammengeschlossen haben. Koordinatorin von DIPEx Germany ist die Freiburger Psychologin Prof. Dr. Gabriele Lucius-Hoene.
Außerdem untersucht ein Team um Dr. Christine Holmberg von der Berlin School of Public Health der Charité in einer Online-Studie, inwieweit das Portal Patienten den Umgang mit einer Erkrankung erleichtern kann. Mit den Ergebnissen ist in den kommenden Monaten zu rechnen.
Weitere Informationen:
www.krankheitserfahrungen.de
Kontakt:
Prof. Dr. Gabriele Lucius-Hoene
Institut für Psychologie
Albert-Ludwigs-Universität Freiburg
Tel.: 0761/203-3050
E-Mail: lucius@psychologie.uni-freiburg.de, info@krankheitserfahrungen.de
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Foto: Britt Schilling
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