EURORDIS

EURORDIS and its members launch new position paper calling for urgent change to improve patients’ access to rare disease therapies in Europe

PARIS, 13-Dec-2017 — /EuropaWire/ — EURORDIS and its over 700 member patient organisations have launched a new position paper calling for urgent…

6 years ago

EURORDIS to represent people living with a rare disease across Europe in new EU-funded INNOVCare project

BRUSSELS, 24-11-2015 — /EuropaWire/ — EURORDIS will be the voice of people living with a rare disease across Europe in…

8 years ago

EURORDIS partners in ADAPT SMART project that enables coordination of Medicines Adaptive Pathways to Patients (MAPPs) activities

ADAPT SMART PARIS, 30-9-2015 — /EuropaWire/ — EURORDIS is partnering in the recently launchedADAPT SMART* project, which will establish a…

9 years ago

EURORDIS: Rare diseases are not yet recognised as an international public health priority

BRUSSELS, 18-3-2015 — /EuropaWire/ — The 22nd meeting of the EURORDIS Round Table of Companies recently took place in Brussels…

9 years ago

EURORDIS marks Rare Disease Day 2015 with ‘Rare but Real: Talking Rare Diseases’ discussion event on 24 February at the Residence Palace, Brussels

PARIS, 12-2-2015 — /EuropaWire/ — To mark Rare Disease Day 2015, EURORDIS is holding a 'Rare but Real: Talking Rare…

9 years ago

Applications now open for EURORDIS ExPRESS 2015 summer school

PARIS, 29-10-2014 — /EuropaWire/ — ExPRESS 2015 is the name of the exciting new programme for the upcoming annual EURORDIS…

10 years ago

EURORDIS: The International Rare Diseases Research Consortium develops recommendations to guide the policies and funding strategies to establish 200 new rare disease therapies by 2020

The Therapies Scientific Committee recommendations PARIS, 25-6-2014 — /EuropaWire/ — The International Rare Diseases Research Consortium (IRDiRC) Therapies Scientific Committee (TSC)…

10 years ago

EURORDIS: Participants in over 80 countries join together for better care on the Rare Disease Day 2014

Paris, France, 28-2-2014 — /EuropaWire/ — Today is our day. 28 February 2014. Rare Disease Day 2014. Let the world know! There…

10 years ago

Rare Disease Day: Novartis hosts 2nd international conference dedicated to the research of rare and orphan diseases

Company is pleased to host second international conference dedicated to the research of rare and orphan diseases Novartis is engaging…

10 years ago